Jhaysonn's Cure Donation Fund

New challenges expect new blessings...Never Lose Faith.

5/31/2013 - Today we discovered that the GVH we have talked about is affecting Jhaysonn's lungs because of the Graft vs. Host disease. This new thing is called Bronchiolitis Obliterans is slowly obstructing his lungs requiring special care to slow and stop its progression. If you read the link you can see that this is nothing to play with. Although we remain thankful that the cancer remains in remission, this new response to the bone marrow transplant (Graft vs. Host disease) is not over. What it means is that we have to find a way to control this GVH enough to prevent his lungs from scarring over. The scar tissue that does develop is not reversible.

Yes it seems that the battles continue but Jhaysonn's spirit is not diminished, he remains his joyful self and awaits the Lord's full healing. In the meantime we must respond to the path God has put forward and prepare for another trip but his time to Washington, DC and the National Institute of Health. In the next couple months Jhaysonn will have to travel and stay in Washington for what we estimate may be an aggregate of one to two weeks depending on the travel schedule, testing involved and the results these new specialists find.

As you know nothing in Washington is cheap so we are asking for your help to defray some of the costs involved by making a donation of any size to help Jhaysonn come and go. As you may know, when Jhaysonn returned home in 2009 with cancer, he was uninsurable with a pre-existing condition that required constant effort to find resources for what our son needed. We have to employ every resource and method to insure he gets the care he needs to survive.

Even through all of this Jhaysonn reminds us every day how wonderful he is and how his faith remains a beacon for all who know him. What a lesson in endurance, courage and focus on God's promises he is to everyone. Jhaysonn deserves to go on, meet life again, and overcome the long term problems he faces arising from fifty-five cycles of chemo, nine full body radiation treatments and the stem cell transplant. Those beautiful hands on the classical guitar will play again!

Please continue to pray for him and send your love. We believe that God hears our prayers, and after all we are still here nearly five years later. The fight will continue on to victory one day Praise God! We thank Jesus and everyone who continue to help him overcome this very long journey.

Thank you.

Your donations will go to defray costs for Jhaysonn's trip to the NIH, Washington.

Mail Option #1 - For a tax deductible contribution please mail to:

JACKSONVILLE CENTRE OF THE ARTS
P.O. Box 350405
Jacksonville, FL 32235
Please enter into the check memo line: "Jhaysonn's Cure Fund"

JCA is a 501(c)3 under the US Tax ID#31-1740457 and have agreed to process your donations and reply with confirmation to your address. You will receive an official confirmation from JCA.

Instant Option #2 - If you don't want or need a tax deduction you can make a direct contribution through PayPal (no account setup is necessary).

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By God's Grace!

Through the experience we are reminded of the Via Dolorosa and how Jesus established a key principle about our trials. How many steps, strikes and beatings did Jesus take for us willingly and readily only then to forgive humanity?

At times we can feel the drain of the earthly life He must have felt so grievously; but with every knee drop, every blood spattered moment, every cry...He never failed in the end to forgive, provide hope, and give us His story of Love, Compassion and Devotion by His actions and in turn gave us the gift of Grace. A free gift to all; that by 'just believing' our own journey begins for us to see the real value of living.

Thank you for your support!

Just so you know if you are new to the site... Since March of 2009 there have been a multitude of challenges we have had to undergo when Jhaysonn returned home from South Korea uninsurable. From medicine to politics this journey has shown us the difference between the power of law and the power of God.

When Jhaysonn left on his first real job since graduation from Stetson University in 2007, then return home with a rare case of Primary Refractory Hodgkin's Lymphoma; then having to endure thirty-eight months of what amounted to torture for Jhaysonn, and then finally able to get a new treatment called SGN35 (Adcetris), watching God's Tapestry unfold has been difficult, full of fear, and moments of despair and wonder.

None the less and many remissions later the cancer finally went into what is now the longest remission period since March of 2009. Although Jhaysonn is now in a rather difficult recovery period after all the damage done to his body, he is now able to look forward to a different phase now free of cancer since April, 2012!

Thank You and God Bless You for Your Thoughts Prayers and Support.

Jhaysonn with Dr. Cabeza at Shands Cancer Center

The sweetest PA taking a moment on a good day to raise a smile,
and Jhaysonn playing at Douglas Anderson School of the Arts

Jhaysonn's Cure Donation Fund

Bone Marrow Transplant Birthday: 2/19/2011

Thank you for your support!