New challenges expect new blessings...Never Lose
5/31/2013 - Today we discovered that the GVH we have
talked about is affecting Jhaysonn's lungs because of the Graft vs. Host disease.
This new thing is called
Obliterans is slowly obstructing his lungs requiring special care to slow
and stop its progression. If you read the link you can see that this is
nothing to play with. Although we remain thankful that the cancer remains
in remission, this new response to the bone marrow transplant
(Graft vs. Host disease)
is not over. What it means is that we have to find a way to control this
GVH enough to prevent his lungs from scarring over. The scar tissue that
does develop is not reversible.
Yes it seems that the battles continue but Jhaysonn's
spirit is not diminished, he remains his joyful self and awaits the Lord's full
healing. In the meantime we must respond to the path God has put forward
and prepare for another trip but his time to Washington, DC and the National
Institute of Health. In the next couple months Jhaysonn will have to
travel and stay in Washington for what we estimate may be an aggregate of one to
two weeks depending on the travel schedule, testing involved and the results
these new specialists find.
As you know nothing in Washington is cheap so we are
asking for your help to defray some of the costs involved by making a donation
of any size to help Jhaysonn come and go. As you may know, when Jhaysonn
returned home in 2009 with cancer, he was uninsurable with a pre-existing
condition that required constant effort to find resources for what our son
needed. We have to employ every resource and method to insure he gets the
care he needs to survive.
Even through all of this Jhaysonn reminds us every day how wonderful
he is and how his faith remains a beacon for all who know him.
What a lesson in endurance, courage and focus on God's promises
he is to everyone. Jhaysonn deserves to go
on, meet life again, and overcome the long term problems he
faces arising from fifty-five cycles of chemo, nine full body radiation
treatments and the stem cell transplant. Those beautiful
hands on the classical guitar will play again!
Please continue to pray for him and send your love. We believe that God
hears our prayers, and after all we are still here nearly five years later.
The fight will continue on to victory one day Praise God! We thank Jesus and
everyone who continue to help him overcome this very
Your donations will go to defray costs for Jhaysonn's trip to the NIH,
Mail Option #1
- For a tax deductible contribution please mail to:
JACKSONVILLE CENTRE OF THE ARTS P.O. Box
350405 Jacksonville, FL 32235 Please enter into the check
memo line: "Jhaysonn's Cure Fund"
JCA is a 501(c)3 under the US
Tax ID#31-1740457 and have agreed to process your donations
and reply with confirmation to your address.
You will receive an official confirmation from JCA.
Instant Option #2
- If you don't want or need a tax deduction you can make a direct
contribution through PayPal (no account setup is necessary).
___________________________________________________________________ By God's Grace! Through the experience
we are reminded of the Via Dolorosa and how Jesus established
a key principle about our trials.
How many steps, strikes and beatings did Jesus take
for us willingly and readily only then to forgive humanity?
At times we can feel the drain of the earthly life
He must have felt so grievously; but with every
knee drop, every blood spattered moment, every cry...He
never failed in the end to forgive, provide hope, and
give us His story of Love, Compassion and Devotion by
His actions and in turn gave us the gift of Grace. A free gift to all;
that by 'just believing' our own journey begins for
us to see the real value of living.
See the article at the Jacksonville
READ ARTICLE HERE ________________________________________
Oh boy, more chemo...
Matthew donates life giving stem cells
Many tired days
Jhaysonn on bike finding his feet.
Thank you for
Just so you know if you are new to the site...
Since March of 2009 there have been a multitude of challenges we have
had to undergo when Jhaysonn returned home from South Korea uninsurable. From medicine to politics this journey has
shown us the difference between the power of law and the power of
When Jhaysonn left on his first real
job since graduation from Stetson University in 2007, then return home with a
rare case of Primary Refractory Hodgkin's Lymphoma; then having to endure thirty-eight months of what amounted to torture
for Jhaysonn, and then finally able to get a new treatment called
watching God's Tapestry unfold has been difficult, full of fear, and moments of
despair and wonder.
None the less and many remissions later
the cancer finally went into what is now the longest remission period
since March of 2009. Although Jhaysonn is now in a rather
difficult recovery period after all the damage done to his body,
he is now able to look forward to a different phase now free of cancer since April, 2012!
Thank You and God Bless You for Your Thoughts
Prayers and Support.
For our son: Deut: 31:6 - Be strong and of good courage,
do not fear nor be dismayed; for God, He is the One who goes with
you. He will not leave you nor forsake you."
18:28 For you will light my candle: the LORD my God will enlighten
Psa 18:29 For by thee I have run through a troop;
and by my God have I leaped over a wall.
Other Links and Information: What is
Hodgkin's Lymphoma chemotherapy info: Here Bone
marrow stem cell transplant info:
Article on Chemotherapy Induced Peripheral
Here Article on Photopheresis
procedure for GVH:
Reach your State Representative's:
Reach your Senator's: Here Save a Life,
Give Blood! If you are
in the Gainesville area, please visit the Lifesouth Blood Center: Link
Here If you are in Jacksonville, please visit the Florida/Georgia
Blood Alliance: Link
Here (We want to thank everyone who donated blood for
Jhaysonn for his Bone Marrow Transplant.)
CEO of Shands UF for your unending support
and assistance finding methods to help those uninsured.
Thank You Donna Deegan for playing a key role
saving our son's life through connecting
SGN-35 and Dr. Foran
2/21/2011 - Thank You Dr.
Robinson, Patrece Robinson, The Stetson Alumni, The Choir of the
First Presbyterian Church, Deland and Fred Eshelman for taking
the time to help Jhaysonn as well as all who attended the fund raiser at
Stetson's Elizabeth Hall.
3/6/2011 - Thank You! Shannon
Booker & Kristin Campbell, Georges Music, Landsharks at Jax Beach for
putting together a fantastic show,
and to all the bands that donated their time to play and raise funds for
Thank you to everyone who attended and shared the great music put on by
great artists all day long!
Special Thanks to Iceland Spring
Water for your donating twenty cases of water for Jhaysonn.
high PH water will play a great part in keeping Jhaysonn's body
Thank You! JCA for helping Jhaysonn by providing tax-deductible
Support Florida Chain for Better Florida
Fantastic Free Bible Research Tool
Ron Pathak for any questions you may have or report any broken links